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NO MORE “TERRI SCHIAVO” CASES.
HOW TO HAVE YOUR DESIRES CARRIED OUT IF YOU CAN’T TELL THE DOCTOR WHAT YOU WANT.

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Two thoughts prompted me to write this. The first the widely publicized case of Terri Schiavo.Mrs. Schiavo did not have a Durable Power of Attorney for Health Care, sometimes called an “Advanced Directive,” expressing her clear instructions about how she wanted to be treated if she were incapacitated. Her failure to make her wishes known led to what the Supreme Court once called a “prolonged and anguished vigil” for her family.

The second is the Federal “medical privacy” law commonly known as HIPAA which prohibits doctors from communicating with others about their patients’ situations --- even when they might otherwise want to. People should be able to appoint someone to deal with their health care issues if, for any reason, they cannot. They should have the assurance that a “health care representative” whom they designate will have the same access to their medical records and physicians that they do.

The only way to do this effectively is in a Durable Power of Attorney for Health Care.

The Terri Schiavo case has brought the courts and the media into what should be a private matter. No matter what your personal views are on health care issues, you should be able to express them in a way that leaves no doubt what they are and how they should be carried out. These matters should never be left to the courts or made public in newspapers.

Many people either have no documents relating to health care or have signed fairly short, generic “living wills.” These documents do not really express people’s wishes other in very broad terms. There are at least two major problems that they do not address.

The first difficulty is that the forms do not authorize health care providers to communicate with a designated health care representative or anyone else, other than the patient. None of the forms, including those in the Connecticut Statutes, contain any language about HIPAA. Under HIPAA, unless you have given your representatives specific written authorization allowing them to receive medical information, doctors cannot communicate with them. The law provides heavy penalties for providers who give information to anyone other than the patient without written authority specifically referring to HIPAA.

There is a very strong possibility that you will not receive treatment that you want, or that you may be given health care that you do not desire. A properly drafted Durable Power of Attorney for Health Care should specifically give your representatives the right to have access to medical records, and to discuss treatment options with doctors.

The second issue is that the simple forms, including those in the Connecticut Statutes, just do not deal with some of the most important issues. For example:

Do you want to be taken care of at home instead of a nursing facility?

If you have a terminal condition, would you want hospice care?

Do you see a real difference between not being treated and stopping treatment that has already begun? Some health care providers will insist on continuing treatment in all events because not doing so is “abandoning” the patient.

What level of medication would you accept for relief of intractable pain?
Health care providers sometimes withhold pain medication on the grounds that it may make the patient drug dependent. Almost all of my clients with whom I have discussed this have said that, if they were terminally ill and were experiencing unbearable pain, it would not matter if they became “dependent.”

What are your wishes regarding so called “tube” feeding? You should be very specific if, and under what circumstances, it would be acceptable to you to have non-oral nutrition withheld.

Should someone to have the authority to compel health care providers to carry out your express desires? Suppose that a physician, for reasons of his own, simply will not follow your representative’s wishes that you have expressed in writing?

Are there specific treatments that you do not want in any circumstances?

A well thought out Durable Power of Attorney for Health Care should address all of these issues.

Are you in favor of anatomical gifts or do oppose making them? Do you make a distinction between anatomical gifts for “transplantation and therapy” and those for “medical education and advancement of science”? Designating “donor” on your driver’s license or signing a short anatomical gift form could open the door to a medical school anatomy class. Almost all of my clients who make anatomical gifts want them limited to helping other people by transplantation. The choice should be yours.

Small may, indeed, be beautiful, but shorter is not better. The 3 or 4 page forms, including the ones in the Statutes, are better than having nothing at all. However, they do not allow medical providers to communicate with your Health Care Agent. They do not let you express your own, personal views on how you want to be taken care of. Individually drafted Durable Powers of Attorney for Health Care help to have your specific intentions.

If you cannot make your own health care decisions, courts should not be making them for you. Trusted relatives or friends should. They should have the authority they need to carry out your intentions.

A properly planned and drafted Durable Power of Attorney for Health Care can go a long way toward guaranteeing that you will receive the care that you desire and that you will not be forced to undergo medical procedures that you don’t want.

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